Our son Taylor was born with Apert Syndrome (Acrocephalosyndactyly). This rare genetic birth defect causes the sutures (cracks) in the skull at birth to be fused as well as his fingers and toes. In an Apert child’s early years it’s imperative that these sutures be released and the skull opened up to give the brain room to grow and develop. With the help of the World Craniofacial Foundation my family's dream has become a reality - to help other families with Apert children, as well as children with other facial differences. Our family has been thrust into a world of surgical teams located in Los Angeles and Hollywood, California, life and death decisions, and daily scenarios that families with healthy normal appearing children never experience. Now with Taylor needing only 20 or so more reconstructions or procedures left until adulthood, the Wilson family has decided that its time to help others that are where we have been.
